Lola Harbour

Thanks for taking the time to visit Lola's JustGiving page and THANK YOU SO MUCH for what you are giving - it will make SUCH a difference to her life.

Lola is our beautiful three year old and she has a condition called Angelman Syndrome, which is very rare and there are only 2,000 people in the UK with the condition. It means that despite being a very determined and sassy young lady, she will never speak and her almost constant background epilepsy means she struggles to walk and finds all co-ordination difficult. With an extraordinary medical team to support her (as her Angelman signature is genetically unique) and a great family behind her - including her amazing brother Oskar she will need a LOT of support.

Thats where YOU come in because you can help her find her voice with communication equipment that enables her to point and sign for things and to tell us how she feels. People with Angelman syndrome  can understand the world around them - but just cant talk to us about their needs. 

We are raising money first of all for a specialist ipad that will help her communicate using a system called AAC (Augmented Assisted Communication) and then there are the wheelchairs, supports, walking aids - sleeping is real challenge as she gets older as she will get up in the night and if she walks without us there is liable to fall so she needs a specialist bed.

The NHS is amazing but just cannot deliver enough of the services she needs in good time and at the right standard so every family in this situation finds themselves looking for brilliant and supportive people like you to help Lola enjoy her life.

JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects.  If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.