Conditions

Autism is a lifelong neurological, developmental disability that impacts the way a person communicates, learns, and experiences senses and emotions. 

Cancer is a large group of diseases that can start in almost any organ or tissue of the body when abnormal cells grow uncontrollably.

Cerebral palsy or CP is a condition that affects muscle control and movement and can present in arms and legs either separately or together and usually caused by an injury to the brain before, during or after birth.

Dravet syndrome (DS) is a severe form of epilepsy characterized by frequent, prolonged seizures.

Epilepsy is a condition that affects the brain, causing repeated seizures. Epilepsy can start at any age and there are many different types.  

Flat head syndrome is the umbrella term for a flat head condition that can appear in babies and infants that affects the skull, making the back or side of a baby's head appear flattened.  

SWAN stands for ‘syndrome without a name’ and these are genetic conditions so rare they often remain undiagnosed. 

99% of genetic conditions are classed as rare*. Often rare diseases are chronic and life-threatening. 

Rett syndrome is a severe condition of the nervous system. It is almost only seen in females and affects all body movements.

Spinal muscular atrophy (SMA) refers to a group of hereditary diseases that can damage and kill specialized nerve cells in the brain and spinal cord (motor neurons).