Oakleys Journey

Oakley is 4 years old and has a rare genetic disorder, as well as dyskinetic cerebral palsy.

Because of this, Oakley has very complex medical and physical needs. He has spent many months in and out of hospitals. Oakley requires 24-hour tube feeds into his jejunum, regular deep suctioning, nebulizers, oxygen, medications, and constant medical support.

Oakley has a team of nurses who assist him both inside and outside of the home. He is also under the care of the local children’s hospice.

As Oakley’s condition is so rare, we don’t have a prognosis for him or his future. Therefore, we are fundraising for viral therapies and equipment for him, none of which is available on the NHS. Oakley has attended a few intensive therapy courses to date and has made outstanding progress. He is so determined and puts his all into the therapy he does. He is an absolute inspiration, and all the therapy will help him live the most independent and comfortable life he can.

Thank you for supporting us on this journey to give Oakley the best chances. xx

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7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.