Rett UK
Leading Charity for Rett Syndrome Support in the UK
Rett UK is the only charity in the UK providing specialised professional support for individuals and families affected by Rett syndrome. Established in 1985 by Yvonne Milne MBE around her kitchen table, they have grown into the leading organisation for Rett syndrome information and resources, trusted by families and medical professionals alike.
Their mission is to ensure that every person with Rett syndrome has access to the resources and opportunities needed to reach their full potential and live fulfilling lives. They work closely with families, healthcare providers, and educators to build awareness, understanding, and support for this rare condition.
Types of Support
Rett UK assist families with:
Diagnosis Support
Family Contact Network
Care Planning
Local Support Groups
Advocacy
Sibling Support
Check out their website for more information and if you know a family who could benefit from fundraising support to support the costs associated with their child's care, Tree of Hope are here to help too.
